Monday, October 7, 2013

State and Local Alzheimer's Disease and Caregiver Resources

State and Local Alzheimer's Disease
AND cAREGIVER Resources
 
Advocacy, Education, Caregiver Support
 
Alzheimer's Association                                                                                                1-800-272-3900
·         www.alz.org
Provides comprehensive information for family caregivers, healthcare providers, researchers and the media on risk factors, diagnosis and treatment options; day-to-day care; legal and financial planning; safety services and MedicAlert+SafeReturn; current research; Association news releases, and links to local chapters.
Alzheimer's DiseaseEducation and Referral (ADEAR) Center                      1-800-438-4380
·         www.nia.nih.gov/alzheimers
Provides current and comprehensive Alzheimer's disease information and resources from the National Institute on Aging; research updates; directory of National Institute on Aging Alzheimer's Disease Centers; clinical trials database; recommended reading list for caregivers; and press releases.
 
Area Agencies on Aging (AAAs)                                                                                                1-800-252-9240
Services to help older Texans, their family members and caregivers obtain information and assistance for locating and accessing community services; information on services for persons 60 years of age and older, including healthcare benefits counseling; case management; nutrition services; transportation; in-home help; senior centers; and the Retired Senior Volunteer Program (RSVP).
 
Texas Department of State Health Services                                                        1-800-242-3399
Alzheimer's Disease Program
Provides information, education, and support to individuals with Alzheimer's disease and their caregivers; addresses the burden of Alzheimer's disease through statewide strategic planning with the Texas Council on Alzheimer's Disease and Related Disorders and the Texas Alzheimer's Disease Partnership; staffs the legislatively mandated Texas Council on Alzheimer's Disease and Related Disorders; and serves as the state's liaison to the Texas Alzheimer's Research and Care Consortium.
 
Texas Department of Aging and Disability Services                                          1-800-252-9240
Caregiver Support Program administered by Area Agencies on Aging                                                                     
In-home and community-based services for individuals who are elderly or disabled.
·         http://www.dads.state.tx.us/taketimetexas/index.html- respite services
 
Aging and Disability Resource Centers (ADRCs)
·         www.dads.state.tx.us/services/adrc/locations.html
Serves persons with disabilities and family caregivers of all ages.Will be statewide in October 2013.  Search locations online.
 
Texas Department of Aging and Disability Services, Center for Policy and Innovation
·         www.taketimetexas.com
·         Take Time Texas                                                                                      1-512-438-5555
·         Texas Respite Coordination Center was created to offer caregivers and respite care providers services, resources and educational materials.
 
Caregiver SOS by WellMedCharitable Foundation                                                                            1-866-390-6491
·         www.caregiversos.org
·         Includes support provided by Caregiver SOS Centers across Texas, tele-learning through Caregiver Teleconnection and Community Stress-Busting Program for Family Caregivers,
focusing specifically on helping caregivers with their stress. 
 
 
Aging and Disability Services
 
Texas Department of Aging and Disability Services                                         1-512-438-3011
·         www.dads.state.tx.us/
Information on long-term aging and disability services; administers long-term services and supports for people who are aging and who have cognitive and physical disabilities; licenses and regulates providers of these services, and administers the state's guardianship program.
 
Consumer Rights, Protection, and Complaints and Abuse
 
Office of the Attorney General                                                                                 1-800-621-0508
Consumer Protection Division                                                                  
Senior Texans' information on consumer protection; rights of the elderly; registering complaints against businesses; reporting senior fraud; finding a nursing home; advance planning; health and safety; and Senior Alerts.
 
Texas Department of Aging and Disability Services                                         1-800-252-2412
Long Term Care Ombudsman Program                                                  
Advocates for quality of life and care for residents in nursing homes and assisted living facilities; identifies, investigates and resolves complaints made by, or on behalf of, residents and provides services to help in protecting the health, safety, welfare and rights of long term care consumers. Provides information and assistance in choosing the most appropriate living residence.

Texas Department of Aging and Disability Services                                         1-800-458-9858
Consumer Rights and Services                                                                  
Information for consumers and providers on different types of long-term care facilities; quality ratings and comparisons; how to file a complaint about a facility; and provider training opportunities; takes complaints about the treatment of people who receive services in long-term care facilities or in their homes.
 
 
 
Texas Department of State Health Services                                                        1-800-252-8154
Division for Mental Health/Substance Abuse Services 
Provides consumer right services for mental health protection; community programs, services and standards for persons with mental health and substance abuse issues.
 
Texas Department of Family and Protective Services                                     1-800-252-5400
·         www.dfps.state.tx.us/
Takes and investigates reports of abuse, neglect, or exploitation of children, the elderly, and/or people with disabilities; services for children, adults, and people with disabilities, including investigation of reports of abuse, neglect, and exploitation at home or in facilities licensed by state agencies; and arranging for protective services.  Protective services may include referral to other programs; respite care; guardianship; emergency assistance with food, shelter, and medical care; transportation; and counseling.
 
Medicaid/Medicare
 
Texas Medicaid Hotline                                                                                                               1-800-252-8263
General information on the Texas Medicaid program.
               
Centers for Medicare and Medicaid Services                                                     1-800-633-4227
·         http://www.cms.gov/
Official U.S. government site for information on Medicare/Medicaid eligibility, enrollment, and premiums; search tools for state-specific information on health plan choices; nursing home comparisons; prescription drug programs; participating physicians; and plan coverage.
 
Research and Clinical/Diagnostic Care
 
Alzheimer's Disease and Memory Disorders Center                                       1-713-798-4734
Baylor College of Medicine       
Provides members of the Houston community and surrounding areas with evidence-based diagnostic and clinical care, as well as opportunities to participate in clinical trials for promising therapies; national and international contributors to research designed to learn the causes of Alzheimer's disease, and to develop new prevention and treatment strategies; education; and diagnosis and treatment of patients with Alzheimer's disease and related disorders.
 
Alzheimer's Disease Center                                                                                       1-214-645-8800
The University of Texas Southwestern Medical Center                
Dedicated to finding ways to treat and prevent Alzheimer's disease and provides education to individuals with Alzheimer's and their loved ones about the research, treatment, and support available to them; conducts studies on brain changes related to healthy aging, mild cognitive impairment, Alzheimer's and other disorders.
 
Texas Tech University Health Sciences Center                                                   1-806-743-2391
School of Medicine
Scientific research on Alzheimer's disease and aging; patient evaluation and clinical care; geriatric and long-term care education through the Garrison Institute on Aging; DNA Bank; and patient care/clinical services for Alzheimer's disease and Parkinson's disease.
 
University of North Texas Health Science Center                                             1-817-735-2506
Institute for Aging and Alzheimer's Disease Research
Scientific research and clinical trials on Alzheimer's disease and aging; patient evaluation and care through clinics, including a specialty Memory Clinic; and geriatric education; clinical trials; research; patient education and care.
 
Texas Alzheimer's Research and Care Consortium                                           1-512-925-3320
·         www.txalzresearch.org
Information about state-funded Alzheimer's disease research at member Texas medical schools and health science centers; latest research publications by TARCC researchers, press releases, a history of state involvement in Alzheimer's disease research, and a resource list for Alzheimer's disease patients and their caretakers.
 
Texas A&M University Health Science Center                                                   1-979-436-0319
Department of Neuroscience and Experimental Therapeutics
Directs nationally recognized laboratories focused on the neurobiology of aging and  neurodegenerative diseases such as stroke and Alzheimer's disease, funded by agencies such as the National Institutes of Health (NIH), the National Science Foundation (NSF) and other private foundations.
 
LEGAL
 
Texas Legal Services Center                                                                                        1-800-622-2520
·         http://www.tlsc.org/
Provides legal assistance for older Texans,including counseling, legal representation, and document preparation.
 
 
INSURANCE
 
Texas Department of Insurance                                                                                                1-800-252-3439
Provides information, counseling, and help in filing complaints against private insurance providers; health information, counseling and advocacy; insurance fraud; and publications for seniors.
 
Texas Long-Term Care Partnership:  Own Your Future
·         www.ownyourfuturetexas.org
Created by the Texas Legislature to give Texans the information and tools needed to plan for long-term care.  The Partnership is a collaborative effort between private and long-term care insurance providers, their authorized agents, and state government agencies, including the Texas Department of Insurance, the Texas Health and Human Services Commission and the Texas Department of Aging and Disability Services. 
 
Public Safety
                                                                                                                                                1-512-424-2080
Texas Department of Public Safety Silver Alert Program                                              
·         http://www.dps.texas.gov/dem/Operations/Alerts/index.html
Assists law enforcement in the recovery of missing senior citizens with a documented mental condition.   Caregivers should immediately report wandering incidents to their local law enforcement agency.  Only law enforcement can request activation of the Texas Silver Alert Network, having met state alert criteria.  Caregivers should prepare in advance through obtaining a physician's letterhead (with signature), indicating the missing senior citizen's name, condition and date of diagnosis.  
 
 
 
 
 
NATIONAL RESOURCES
 
 
Alzheimer's Association                                                                                            1-800-272-3900
·         Research, Education, Safety, Resources, Materials, Local Chapters
·         www.alz.org
 
National Institute of Health/National Institute on Aging                                     1-800-438-4380
·         Alzheimer's Disease Education and Referral Center
·         Disease and Caregiver information, Research, Treatment, News
·         http://www.nia.nih.gov/alzheimers
·          
U.S. Department of Health and Human Services Alzheimer's website                
·         www.alzheimers.gov
 
Alzheimer's Foundation of America                                                                                    1-866-232-8484
·         Disease information, Resources, Caregiver Tips, News
·         http://www.alzfdn.org
 
USAgainstAlzheimers                                                                                                            1-202-349-3803
·         Disease information, Petition, News
·         http://www.usagainstalzheimers.org
 
 
National Caregiving Foundation                                                                              1-800-930-1357
·         Public awareness, Education Info, Distribution materials
·         http://www.caregivingfoundation.org
 
CDC Healthy Aging Program                                                                                                1-800-232-4636
·         Information, Resources, Data, Clinical Services
·         http://www.cdc.gov/aging/aginginfo/alzheimers.html
·         http://www.cdc.gov/aging
 
National Alliance for Caregiving                                                                              1-301-718-8444
·         Research, Resources, Petitions
·         http://www.caregiving.org

 
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